Tuesday, May 31, 2011

05-31-2011

05-31-2011

Yesterday, Memorial Day, was super windy here in Northern Illinois. And it was 90+ degrees. I love riding when it's hot, so I wasn't gonna miss the chance.

I managed to squeeze out about 31 miles on my road bike. It was a real struggle because when the wind wasn't directly in my face, there was such a strong crosswind that it really slowed me down.

I am soooo lucky to have wide open country roads to ride. This picture probably makes it look boring, but it is NOT.

I really noticed a lot of tingling in both feet while I was riding, which I guess is more neuropathy from the chemo. It hasn't bothered me much otherwise. The doctor said he could give me something if that gets to be a problem, but if riding is the only issue, I'll just let it go.

My yearly odometer is at about 320 miles and climbing. Hopefully we'll get some good weather and I can start racking up the rides.

We got lots of rain Saturday, and when I rode by the local golf course I saw that it was closed due to flooding.



Got home and Julie had lined up a party. Had some family and friends over, and we had a cook out and sat around our pool. Some played bags, some swam, some logged a little trampoline time, all seemed to enjoy themselves.




This morning I think everyone was a little sunburnt and tired from a nice long Memorial Day weekend.

And then tonight I uncorked the pool filter to help Julie with cleaning the pool and... we have a leak! There is sand in our water and I am 99.9 % sure there's a tear in the liner. Another word for pool is "money pit". ARRRGGGGGGGGGGGGGGGH!

So, to sum up, I've been feeling fine (other than the whole pool issue). Next chemo is Thursday.

Hope you had a nice holiday weekend.

Saturday, May 28, 2011

05-28-2011

05-28-2011

Two days since chemo and I've been feeling pretty good. Got a quick 19 miles in on the bike after work last night. I actually felt great and would have gone farther but was afraid of getting caught in the rain on my beloved Cannondale (The Princess).

Just to break up the monotony of text, text, text, here's a boring, repetitive, already been done, predictable, you name it, kind of picture from my ride, from the bridge across the Fox at Millington:


Then I came home and mowed the front yard before dark. When I got off the tractor, I was really aware of my fingers humming, like MAD. Wonder if that's a little fallout from the chemo mixed with the vibration from the tractor?

This morning about 5:30 Tessa climbed into bed with Julie and I so I went out and racked on the couch and slept til about 9:30 which is unheard of for me. It was awesome to sleep in but Julie warned me that there will NOT be a repeat performance tomorrow. Tomorrow it's HER turn. Which is fine.

After I got up, I mowed the back yard and worked on a few things. I spent hours running some wires for outdoor speakers on our patio, partly in the rain.

We took Austin and Tessa to get something to eat and I brought a bowl of Wendy's chili back to feast on. For $1.29 you can't beat it. And it tasted good on a rainy and chilly May evening.

I think it's supposed to be rainy again tomorrow, but Memorial Day is supposed to be dry and hot and I am DEFINITELY planning a bike excursion.

***

*Perspective for Memorial Day, #I

A few weeks ago, one of the drivers at the company where I work got the flu. He went to the doctor and they treated him and sent him home. He didn't get better so he went to the doctor and they treated him again and sent him home, AGAIN. He still didn't get better so he went back to the doctor for the third time and this time he was admitted to the hospital.

Eighteen days later he died. Tommy was 31 and left behind 4 children.

The old cliche about "you just never know" is not a cliche, it's a fact.

Tommy's story is HERE

*Perspective for Memorial Day, #II


I have an acquaintance through work that I have to call about once a month. Even though we've never met in person, I feel like I know Alex. He works for one of our customers in far Northern Illinois and lives in Wisconsin. He and his wife enjoy bicycling so we are always swapping stories about that. We also talk about politics, family, the direction of our country and the world. His mother died recently and we had a talk about the meaning of life, etc.

Yesterday I called to check on a business matter. Then, as always, the call turned to "what have you got planned for this weekend?" kind of stuff. When I talk to Alex, the business stuff, although important, is just background, the real meat of the matter is when we discuss what's going on in our lives.

Alex told me that on Memorial Day, he and his wife are going to Wood National Cemetery in Milwaukee to visit the grave of a fallen hero. He and his wife knew this soldier and have known her family for some time. Michelle Witmer was the first woman in the history of the Wisconsin National Guard to die in combat.

Spc. Michelle Witmer's story is HERE

***

When I think about Tommy dying at 31, my battle with cancer beginning at age 52 pales by comparison.

And when I think of the Whitmers losing their 20 year old daughter and sister, our anguish over our daughter moving 2 miles away really seems insignificant.

Really, in view of Tommy's story and Spc. Michelle Witmer's story, how trivial are my problems?

My mom used to say "if you feel sorry for yourself because you don't have any shoes, wait til you meet someone who doesn't have any feet".

Indeed.

Friday, May 27, 2011

05-27-2011 Notes from Maintenance Chemo yesterday

05-27-2011 Notes from Maintenance Chemo yesterday

It was good to see the nice folks at the Cancer Care Facility again after 6 months.

All my levels were good, BP was like 120/80, I think (she said it was OK) weight was 201(!), temp 97.8.

Dr. R. was his usual friendly self. He asked how I was: neuropathy?, any tumors returning?, how did I feel?, etc.

I told him I felt like I had gained weight and was surprised that my weight wasn't 210, because that's what I feel like. I hadn't kept up any kind of exercise regimen over the winter and that at this point I've started riding but not like last year what with the weather sucking and all.

He asked me about biking, how far did I go and what kind of bike, etc? We talked about that for a little bit. His bike is presently in the garage with a flat tire. Mine might as well be for all I've ridden it this spring (~270 miles, but I have BIG plans, all I need is good weather).

I asked him about "chemo fog". I told him that I definitely am absent minded and can tell that my short term memory is not what it was. He acknowledged that that could be a problem with chemotherapy. He encouraged me to keep my mind busy, do puzzles or read. I told him I could definitely do the reading, I have a few books that I have been ignoring. And a 'blog, for that matter.

He did a quick exam, then shook my hand and sent me off to chemotherapy.

This session seemed like it lasted forever. I think I got back in the chair at about 11:30 and didn't get out til 4:20. I couldn't stay awake, but I couldn't sleep either. Could not get comfortable and had the chills. Watched TV and logged into work to see what was going on.



All I got was Tylenol, Benadryl and Rituxan. They started the Rituxan out slow so I wouldn't be likely to get a reaction since it had been 6 months since the last time.

Afterwards, I had mild nausea and a little bit of a headache, nothing major. After I got home, I did NOTHING but watch my White Sox and the Bulls and I fell asleep on the couch sometime in the 4th quarter of the Bulls game. I woke up at 2:12 on the couch. Julie told me this morning that she tried to wake me up with no success, which is unusual for me. Wonder if she put a mirror under my nose....

I noticed things seemed to taste a little different last night but this morning I think I'm nearly back to normal (hold the jokes, I know I was NEVER normal).

I'll repeat the process for the next 3 Thursdays, then consult with the doctor after that. Next Pet Scan in about 3 months, more maintenance 3 months after that.

Nice thing about the maintenance is NO PREDNISONE! No puffy face or ankles, no wired feeling, none of that.

So... this DOES sound like a cakewalk.

Memorial Day Weekend is here. Tessa's coming home and we're really looking forward to having her around for a couple days.

I have two biking excursions on the docket, 1 this afternoon and one Sunday, so we'll see how that works out.

I really DO have an outline for some 'blog subjects, so hopefully I'll get to that soon.

HAVE A GREAT WEEKEND! Thanks for checking in.

Thursday, May 26, 2011

05-26-11 - in waiting room



05-26-11 - in waiting room

At doctor's ofc.... In waiting room. Did i want to see this magazine?

05-26-2011 back in the (chemo) saddle again



05-26-2011 back in the (chemo) saddle again

It's that "maintenance chemo" time of year again. OK, first time for maintenance, there will be 3 more, spaced 6 months apart.

I'm leaving work about 10:30, bloodwork at 11:00, if all goes as planned chemo should start about 11:45 or so and take about 5 hours. I don't know if I get the prednisone this time or not, hoping not.



I really have dropped the ball on m'blog, sorry about that. I will get some updates in here now that I'm back in (chemo)therapy.

Rainy day in No. IL, so I won't miss any good weather or anything.

Hope all is good with you.

More later.

Steve